Agenda at a Glance

• Review all compliant platforms for strategic communication and idea-sharing
• Impact of non-face-to-face engagement
• Continue strong impactful relations in a virtual environment

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• How can we better connect with patients within Medical Affairs
• Evolving the rationale and thought process behind our patient engagement strategy
• Incorporating the patient voice into our current plans vs one way communication to the patient
• Working with patients to serve as authors to peer-reviewed journals and medical publications

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• Learn how and why Horizon created an internal patient campaign highlighting young adults w/ rare diseases
• Understand the need to dig into specific patient populations across many diseases, not just ones your company has programs for
• Discover new ways to approach patient engagement
• Take ideas back to your company on how you can use patient stories to shape your corporate culture

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• Defining a “diverse” population
• Uncovering misperceptions and objections
• First steps to improve engagement

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• Incorporating patient preferences into the design and execution of a digital media strategy
• Designing a digital media strategy with the patient as an equal stakeholder
• Using digital media to globally identify clinical trial leads

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• Clearly defining a strategy for how you choose to engage with patient communities
• Considerations for when to initiate engagement with patient communities
• Defining your approach to patient advocacy and methods to effectively integrate the patient/family perspective across functions
• Integrating the patient perspective into decision-making

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• Create a virtual patient engagement strategy in absence of face-to-face interactions
• Generate novel insights to support product development and launch
• Gather baseline metrics to inform patient engagement efforts
• Develop structure for regular engagement across stakeholders

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The role of the Patient Advocacy function in the biopharmaceutical community is to understand and communicate the needs and priorities of patients and to facilitate the development of solutions to address them. The challenge is not identifying opportunities to align with disease communities, it is prioritizing those opportunities to make the most substantial impact with limited time and resources. In this session, we’ll discuss approaches to define a patient advocacy strategy and how current trends in disease communities can aid in prioritizing activities. 

Key learning objectives:

• Understand the role of Patient Advocacy in a biopharmaceutical company
• Discuss a process for developing a Patient Advocacy strategy
• Discuss how to identify where we can make the greatest impact
• Discuss approaches to identify alignment between corporate goals and advocacy priorities
• Provide case examples of patient advocacy strategy and alignment with current resource trends 

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