Jodi WolffHead of Patient Advocacy
Dr. Jodi Wolff is the Head of Patient Advocacy in the U.S. for Santhera Pharmaceuticals and holds a PhD in Rehabilitation from the University of Arizona. She joined Santhera in 2015 and has been in the neuromuscular field for over 20 years as an advocate for families. Jodi’s responsibilities at Santhera include: create and implement patient engagement and centricity strategies; generate patient insights to support drug development across the life-cycle; facilitate patient input in clinical trial design and recruitment; and form ethical and responsible compassionate use policies. She regularly participates in pre-competitive collaborative projects across the rare disease community. Jodi’s research interest and passion is how to best support youth with physical disabilities in the transition to adulthood.